Alena From 'sMothered' Has a Rare Disorder With a Number of Symptoms

Alena from 'sMothered' was born with a rare disease that requires her to go to weekly enzyme replacement therapy appointments. But what is it called?

Families push for awareness, cure for girls' rare genetic disease HSP - The Washington Post

Families push for awareness, cure for girls' rare genetic disease HSP - The Washington Post

Alena From 'sMothered' Has a Rare Disorder With a Number of Symptoms

Balancing the Beast: A Bright View of Schizoaffective Disorder – Bipolar or Manic-Depressive Type: Helena Smole, Leon Zuodar: 9789619297902: : Books

Give to GOSH: 'My parents said it was like having another daughter, that's how dramatic the change was', London Evening Standard

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Rare childhood disease prompts family to seek cure - The Washington Post